Hi - I recently joined the club in Aug 2011 with a 6mm AN (MRI done in May 2011).

I like a challenge and an excuse to change my diet. My diet (4 weeks now) is loosely based on the findings in this book (China Study) and hoping for at least the status quo for my next MRI (Dec or Jan).

The diet is essientially whole food and vegetarian, althought I am eating a little meat and fish. So thats low GI generally, being NO bread, suger, cake, white rice, milk, yoghurt, beer etc. Lots of fruit, vege, nuts, beans... I cannot give up the whiskey, wine and coffee (but now without milk)

Obviously I am feeling healthier and have dropped 2cms off the waist. Some odd little fatty lumps scattered around my body are shrinking (which I think are like little tumours?) so hoping the one in my head is doing the same.

Having been checking my hearing but cannot be certain things have changed for the better or worse. Certainly the fullness feeling in the ear is not so apparent and my inner ear is regaining some sensitivity. Could be my wishfull thinking..! I am planning to get a official hearing test in another month to check if things are improving

Has anyone else out there had any success in W&W with dietry changes? Success for me equals no growth (or maybe very slow growth)

Its fantastic that the forum exists and makes all this possible, it would have been a lonley journey 10 or more years ago

Back to my carrots, "what's up doc..!"
Martin





 

   

Sorry Martin, I forgot to welcome you to the club. Stick with us and let us know how you are doing.

Skip

I gave up wheat and dairy in May after my diagnosis in April 2011.  I also experimented with acupuncture but think the dietary change has had more of an impact on my overall health.  Red wine is actually good for us ANers as it acts as a natural anti-inflammatory and a blood thinner (no dairy no wheat is essentially an anti-inflammatory diet).  Don't know the the China Study book but will check it out.  I'm also taking reservatrol (thanks Mickey!) which is a supplement derived from red wine grapes.  Also taking tumeric which is a natural anti-inflammatory.  I also stopped using a cell phone or any other electronic device on that ear.

Had a 3 month MRI in July that revealed a tumor with no growth, stable.  A hearing test in late July reported stable hearing as well.  3 months is a short time.  My next MRI is scheduled for January.  What were the symptoms that led you to diagnosis?  What size is the AN in your head?  I had sudden hearing loss July 2010 that lasted  4 to 5 days and another bout in May 2011 that lasted about 5 days.  First time I took nothing.  Second time I took prednisone, awful stuff!  The last hearing loss episode lasted only one or two minutes on June 1st.  I do have that full feeling sometimes and some tinnitus that comes and goes -- which flares up with stress, fatigue or loud noise.

You should check out the thread here: http://www.anausa.org/smf/index.php?topic=3791.0  I found it to be incredibly helpful when first diagnosed.  All the doctors were telling me I needed surgery ASAP and that just didn't feel right.  Being in touch with others who were waiting and watching has been a tremendous help!

Hi Lisa / Jim

I was diagnosed in May with a small 6mm AN, follow up MRI scheduled later this year. I do not know the other measurements and did not think to ask. My main symtoms were gradual hearing loss over about 12 months, immediately after finding this sight I also became aware that I had a feeling of fullnes in the ear with occassional ringing.

Have not convinced the family to go Vege so still eating meat. Like the idea about keeping up the red wine.

I am mainly whole food, breaky is weetbix, fruit and soy milk. Lunch is a salad with no meat, cheese or eggs, but include nuts, seeds, actually enjoying it. For dinner trying to reduce the meet and eat more vege. Have removed processed rice, pasta, all bread and suger etc

Belt size down 2 holes.

I have done a internet based hearing test every week but not seem any significant improvement in my hearing, will get a real test done in late Oct to check, I now have some usable hearing in the left ear, when at my worst I had very limited hearing on my left side. 

In contrast to your experience of dramatic hearing changes mine is stable and only seems to change over months and gradually, very difficult to perceive. My first recollection of the issue was when I could no longer use a phone on my left year (my normall phone ear, incl cell phone).

There is a movie based on the book, that is good if you are keen to learn about diet and health.

http://forksoverknives.com/

Love the forum... a great place thanks for the dialogue

Martin

hi...just posted in a different category....I was just diagnosed w/a Gluten Allergy...with 1 month my tinnitus has "quieted" and feels like my hearing has gotten better...Can't wait to see if the tumor size changes at the next MRI....i'm a believer in trying anything to feel better!

I know that there's a blood test to see if one has celiac which is a autoimmune disorder of the small intestine.  The only cure for celiac is to eat a gluten free diet for life.  There must be some sort of test for the wheat gluten allergy.   I've done a bit of reading about this gluten thing and it is interesting...  Thanks for posting about this MZB475!

Great info Laura!  Thanks!  Were you able to get your health insurance to pay for the test?

Hey Laura,

Just had an MRI last Wednesday.  The AN is about 5mm smaller than it was last July.  Stopped eating wheat and dairy last May.  I've been doing quite a few other things but I think that the change in diet has been a big help.  Thought you'd like to know.  I have not been tested for any sort of wheat sensitivity but its on my list of things to do.  Just need to find a Dr to order it so I can get insurance to pay.  I'm hoping the AN will keep getting smaller and smaller... and disappear!  I'll take the 5mm reduction for now...it feels miraculous from where I was last May!